Today was a difficult day with Luke. He didn’t take his medicine Saturday or today so his behavior was completely out of control. He screamed. He insulted. He blamed. He shouted. He stomped around, broke things, and slammed doors. It wasn’t just one tantrum, he behaved this way the entire day.
By the time he went to bed, he had 4 shouting fits and 3 screaming, crying, hitting, meltdowns. The difference between shouting fits and meltdowns is that Luke retains the ability to speak coherently, albeit horribly, during a shouting fit. During a meltdown Luke vomits nastiness incoherently while screaming, crying, and behaving violently.
I’m taking him to counseling. I’m getting him meds. I’m doing everything in my power to try to help him but it seems his behavior continues to worsen as he gets older. I don’t know what else to do.
The counselor suggested sending Luke to residential treatment – a group home, basically. Jonathan absolutely won’t allow it.
For the time being, I have no choice but to suck it up and manage through the constant insults, berating, screaming, shouting, and violent fits of rage which occur on a daily basis. Luke says his “life is a living hell”, but it’s Luke who is making our lives a living hell in actuality.
Jonathan got paid $400 of the thousands he is owed. While it the saying is true that every little bit helps, $400 doesn’t help that much when you’re owed thousands.
I’m preparing for a yard sale this weekend. I’m fighting the unrelenting fatigue that comes with fibromyalgia and RA after work so preparations are going slow. I’m also planning the sell one of the only electronic devices I have worth selling: the iPad Jonathan gave me for Christmas. I need the money too much not to sell it as much as I’d prefer to keep it.
The only purchases I’ve made recently are medication and clothing. I need medication to continue living. I need to clothing because work suddenly changed the dress code policy so all the clothing I previously wore is now “unacceptable”. The CEO doesn’t think things through when he makes changes like this. Most of us are paid a tiny fraction of his salary and he doesn’t grasp how significant the changes are to our paychecks especially those of us who support more people than just ourselves (he lives alone).
Although I need the clothes, I still feel guilty about buying the clothes – even at 50% off, I feel guilty. That’s another problem with financial instability – even when you purchase things you need, you still feel guilty because the money could have been used for something “more worthwhile”. There is nothing more worthwhile, though. It only feels that way.
Jonathan hasn’t gotten paid again. This is an ongoing problem. Here I am again trying to stretch my earnings to keep the utilities on. Living in poverty is tiring, but so is constant financial instability. We’re not overspending. We live pretty simply, actually. We garden, we buy used cars, I coupon at the grocery store…we’re still falling behind and it sucks.
I’m working to re-home Dee’s dog which I’ve been fostering since she moved. I cannot afford vet bills and I cannot afford another mouth to feed. I’m also wracked with guilt like I should be able to take care of the foster dog but can’t.
What should I sell this time? All the jewelry worth selling has already been sold. The antiques have already been sold. We wouldn’t get much for our older TV or game system, plus the kids enjoy those.
Tomorrow I take Luke to get his blood drawn for labs. He needs regular blood work since he’s on the mood stabilizer risperidone. I promised him a bacon, egg, and cheese biscuit as a reward. I’ll have to raid what’s left of the change jar for his biscuit. I can’t send him to school hungry.
Every monetary decision I make is bad. Well, at least it feels bad. Every dollar I spend on one need takes away from another need. Here’s hoping Jonathan eventually gets paid. Paying all the essential bills this month for things like electricity, phone, and groceries would be a relief.
It feels like there isn’t much to write about that I haven’t already written about.
Today it became apparent that I make a great amount less than my coworkers again. My coworkers were gathered in the hall talking about their stay-at-home spouses (mostly wives) and all the expensive belongings or activities they’ve purchased for their children lately. My home costs half as much as any of their homes and I can still barely make ends meet even with a spouse who works.
I often contemplate changing jobs but fear losing the flexibility my current job offers to deal with child care and my health. Most other jobs in my field involve inflexible schedules, 60+ hour weeks, 24×7 call, and nearly constant travel. Not conducive to raising children. Since Jonathan spends much of his time taking care of his dad these days, I truly am the only one raising the children.
The good news is I’ve paid off one of our outstanding debts so I have a little more money to stretch each month. Mostly I’ll be stretching that money to pay down other debts or to afford Christmas presents since it’s only an extra $100/mo.
On one hand, I need to do something to earn more income. On the other hand, I’m too sick to work a second job and too busy raising children and taking care of everything from cleaning to bills at the house to start a side business.
I’ve written about all this before. It feels like one step closer, two steps back all the time.
A friend of mine from the chronic life and spoonie communities is in dire straights. If you have even an extra $5.00, it would help her tremendously. Presently, she’s staying at a shelter until she can find housing. She’s unable to work due to EDS so she has little alternative but to depend on donations to help her find housing and receive medical care.
The link to her GoFundMe page is: https://www.gofundme.com/2j24q8us
I should be sleeping yet I’m wide awake again. Normally when I’m wide awake this late, I’m having painsomnia (pain so severe you can’t sleep).
Things have gone smoother with Luke recently…until tonight, that is. Luke called Oliver a “bastard”. I told Luke to go to bed for the night for calling his brother names. Luke was defiant and determined to test boundaries so he earned an additional consequence: losing his tablet for the evening. Instead of turning in his tablet, Luke completely. flipped. out.
Luke screamed and shouted and kicked the wall beside his bed. He positioned the tablet so that I’d have to physically wrestle it out from under his body. He called Jonathan and I unfair, the worst parents, fuckers…every adjective he could think of at the time. He threw things at Jonathan and told me that he hopes I die and rot in hell.
This HUGE outburst lead to him losing his tablet, computer, and cell phone. These things were not taken away all at once. He lost them progressively during the course of his massive, manipulative, tantrum.
Jonathan blamed me for Luke’s behavior as Jonathan typically does. If I require a consequence of Luke for his behavior (ie go to bed a little early because he called his brother a bastard), Jonathan blames me for Luke’s ensuing defiant behavior. It’s difficult not to roll my eyes at Jonathan for enabling Luke’s nastiness by refusing to intervene until the situation is completely out of control. Jonathan thinks that I escalate Luke’s behavior by actually enforcing the consequences for breaking a given rule. The family therapist and I disagree. Inconsistent consequences escalate Luke’s behavior. Jonathan tends to enforce consequences inconsistently.
I’m sure it’s no surprised that after all of the shouting, screaming, insulting, name calling, and generally stressful behavior, I don’t feel like sleeping.
My scalp itches. My hair is falling out. I’ve struggled with skin allergies and bouts of eczema all summer.
Luke and Oliver won’t stop being cruel to one another. Oliver hits and calls Luke names. Luke yells, curses, and calls Oliver names. They argue and fight constantly. I don’t know what to do to help them be less cruel to one another. We have a family therapy session next week to discuss these issues.
Jonathan feels too poorly to help around the house again. All responsibilities fall to me. If I don’t cook dinner, assign chores, clean the house, watch the children, check homework, sign papers, feed the animals, and clean the house it simply doesn’t happen.
Jonathan’s paycheck was also a month late causing a huge checking account overdraft. I’ve spent several days trying to sort out the overdraft and persuade the bank to refund hundreds of dollars in fees.
I’ve also spent several days getting in touch with Luke’s teachers in hopes I can proactively set up tutoring and study sessions to keep him from failing 8th grade.
It would be very convenient if I didn’t have a chronic illness right now. I’d have so much more energy for all of this. It’s utterly exhausting. Unfortunately, these are the cards I’ve been dealt and I’m trying hard to accept my hand.