For our 2 year anniversary, Jonathan researched restaurants I might like and we drove to a small town about an hour from where we live to have brunch and visit a small strip of locally owned shops. He bought candles for me at the shop – sandalwood candles.
When I was 17, my mother kicked me out of the house and I lived with a friend for a while. Her family had a tiny spare room which I stayed in. I’d never had my own room before. I’d never had privacy or a door to close or a space to consider my own. The tiny room smelled like the single sandalwood candle I carried out of my mother’s house in a laundry basket. I didn’t own a suitcase.
Sandalwood smells like home. Well, the way “home” should smell if home didn’t smell like garbage, urine, stale cigarette smoke, mildew, and dirty dishes. Sandalwood smells like the way a home that I wanted to live in would smell: Calm, clean, and peaceful. Jonathan doesn’t know what sandalwood smells like home. I doubt I will ever tell him. He just knows I like sandalwood.
The situation at TheJob is starting to get out of hand. They’re implementing a type of web filtering this week. Web filtering isn’t entirely bad, but TheJob has filtered sites for products many of us legitimately use to get our jobs done. Sites for with samples of code, note taking apps, the website we use to check our cell phone plans (we use our personal cell phones for work), etc.
I’m frustrated because this is a pain in the butt and a huge technological step backwards. Instead of typing notes on my tablet during a meeting, I am now to handwrite notes on paper then type up the hand written notes after the meeting and email the typed notes to the participants. Double the work. Every meeting. Everyday.
TheJob is also beginning a huge social media monitoring endeavor. I find this aggravating for a host of reasons, but mostly because we are expected to add TheJob’s social media profiles to our social media to show we’re “committed and engaged”. I don’t mention work on my social media profiles nor do I find what I talk about on social media to be any of TheJob’s business. The problem is, there will be consequences. Negative consequences always follow crappy policies.
Do I close my accounts or wait for the consequences?
Jonathan has no upcoming work for the foreseeable future. Money is already tight. This just makes the money situation 100% worse. I’m already pinching every penny twice. I coupon regularly and plan out every meal. If it’s not on clearance, or at least heavily discounted, I don’t buy it.
I also know that sitting here stressing about money isn’t going to help the situation. Getting a 2nd job isn’t an option for me right now because I’m expected to be available 24×7 in case of emergency at the day job and I’m also not quite well enough to take on another job. Granted, I feel better than I have in the past, but I’m still low on energy and experiencing quite a bit of pain.
For instance, this week I stumbled on a toy and my ankle swelled to twice it’s size. I couldn’t walk up or down stairs properly for several days. My back has started aching again as well. I was bagging my own groceries at the store today and the pain was so intense my hands started to shake. When I got home I had to take a muscle relaxer and lie down.
This week I’m going to list some unused items on Craigslist to fill the gap. After those items sell, I’ll start considering opening an Etsy shop…or something else which accommodates my not-too-stellar health. I feel like, if I weren’t sick with two diseases that cause pain and fatigue, I would be so much more productive and we wouldn’t struggle so hard.
The kids and I are visiting my best friend 7hrs from home. Jonathan wouldn’t come because he hates cities and she lives in a big city. I promised the kids a vacation before I ran out of money so visiting a friend was the only vacation i could afford. Being poor is annoyingly limiting.
The trip has been enjoyable for the most part. Luke has complained about most things for most of the trip. Oliver has done his best to instigate Luke. Luke has also been up to the usual shenanigans like refusing to order food at restaurants because he “doesn’t deserve to eat” and spending all of his money at the mall then complaining that he has no money. At least he hasn’t flopped down on the sidewalk and refused to move or handled feeling stressed by crying and grunting. It could be worse, but a break would be nice.
I’ve taken pics of everything we’ve done and sent them to Jonathan. Jonathan hadn’t replied to any of the pictures or texts. Maybe he’s mad? He’s always mad lately. The night we left he told me that I never listen to anything he says and I’m always dramatic. For all I know he’s not vrepkying because he’s secretly mad about some unknown circumstance.
Gustav the Intolerable and my best friend live together so I had to deal with Gustav at dinner tonight. Gustav called Luke a brat right after dinner when Luke was having an ADD/anxiety attack. I tried to explain that it wasn’t within Luke’s control and that like does not take medicine yet because it’s a tough medical choice to decide to treat the anxiety or ADD first. Gustav responded that it wasn’t a tough decision.
Writing this post I realize that today has actually been quite stressful. I hadn’t stopped to consider that until now, honestly.
Today I’m itching all over. All my skin feels crawly and itchy. Did I get into something I’m allergic to? Did someone add fabric softener to my laundry on accident? Am I having a weird guaifenesin side effect? No idea.
My tongue is blistered and sore again. Eating has been difficult because of the TMJ pain. When I eat something that requires chewing, I worry I’ll be overcome with another severe headache.
Aside from the above symptoms, I’ve had less joint stiffness and body pain overall. I did take a nap this evening, but I was moderately tired instead of severely exhausted so that’s an improvement. Still drinking tons of water, but I see this as a positive side effect because drinking water is a healthy habit.
Today, May 12th is Fibromyalgia Awareness Day. I know many people don’t know much about it. The commercials for the drug Lyrica, that I see on television from time to time, say fibromyalgia is overactive muscle pain, but that doesn’t give it justice. Fibromyalgia is a life changer. It’s a fun taker, It’s a relentless pain giver. Taking one pill, 99% of the time, doesn’t help. I’ve tried Lyrica and my result was 70 pounds of weight gain. Needless to say, I couldn’t stay on it. I have a bag filled with medications, and I still have pain.
These are some of my symptoms: headaches, nerve pain, back pain, chronic fatigue, neuropathy, irritable bowel syndrome, rib cage pain, carpal tunnel in both hands. I’m in pain when it’s too cold. I’m in pain when it’s too hot. I have dull pain, sharp pain, persistent pain and aching in my shoulders…
Ugh. This is just beyond words. Giving your employer access to your medical records? Um, no. Maybe that works out great for the few people who don’t have any risk factors for any type of disease, but for those of us with a chronic illness, this is a disaster.
Reader Ali let me know about some dangerous legislation that is on the table right now that would nullify important worker protections on the basis of genetics and disability of workers and their families.
As I’ve discussed before on this blog, the Affordable Care Act (which, full disclosure, gave me the opportunity to have insurance by insisting that insurance companies stop denying me coverage based on my BMI) also had some problematic things, including Workplace “Wellness” Program provisions that allow workplaces to penalize workers for not submitting to invasive blood tests and mental health questions and/or not participating in “wellness” programs regardless of whether or not there was proof of efficacy.